… to this blog
…A new post
Watch this space.
#ItsAboutTime
… to this blog
…A new post
Watch this space.
#ItsAboutTime
It seems that the greater my desire to write, the harder it feels. The ongoing presence of my illness makes my mind is so full but so flighty.
“flighty”
A state where I can’t ever stay but can never fully go.
My mind doesn’t soar . It doesn’t open to stretch and show its span. It doesn’t sweep across the wide, wild skies of imagination, or glide over the deep sea of things and people and adventure and fun.
It flutters, one wing tattered, worn away by brush after brush after brush. It flitters unsettled, unspoken. Too weary for words, too driven to rest, and too desperate to stop.
I long for the peace that will let me just slow. Let me focus on a wave, not the sea; the sun, not the skies. I long for the thready pulse of wings to either
soar
or
stop.
Despite almost never writing these days, I am still here and I still have the DESIRE to write, just not the accompanying drive to action. However, I find myself here with minutes to spare and the determination to put something down.
Because it’s important.
To be fair, I know I’m over reacting, which, naturally, doubles my irritation, but it would seem that I’m not beyond being stung by a throwaway comment. Damn.
I’m angry and frustrated with myself. Even more so because I should be better… and bigger… and past it… and all those things that I expect of myself. Obviously, I am not as immune or as desensitised (read: ‘protected’) as I think.
I spent a lovely weekend with old friends. It’s the first time I’ve made a reunion in a long time, and I’m so glad I went. Earlier, I was showing my youngest sister some photos and happily telling her about it, until she asked if everyone had been understanding of my… condition. Well. They were, yes.
I mean, my old friends from way back. They knew me pre illness. They know me. They love me.
Just one teeny statement though, managed to blow a hole in my surface.
“It is a choice. Anorexia IS a choice”
No it’s not.
“It is”
What do you say?
Even a few minutes walking round some rock pools don’t elicit any responses. An unexpected shot. And yeah… I have to admit, I was a little wounded.
So this is my belated response.
I’ll tell you what’s really weird… and not to be written lightly… When someone suffers with Anorexia, it can be so acute, and so very life changing, that it appears odd that it remains something ‘in the abstract’. For example, despite the knowledge that Anorexia is a MENTAL illness, if a radiologist did a brain scan, a patient with an eating disorder (and maybe their loved ones) might almost expect to see large shadows obliterating whole sections of their brain. (Nowadays of course, neuroscience and improving technology seem to be making it possible to identify all sorts of quirks and trends in the structure of the brain). But for most of us who battle this dominant demon of hunger, it remains an imagined shadow, or a toxic spillage seeping into hidden cranial cavities. Of course it won’t show up on a scan. It’s too deadly for that.
I KNOW it’s different. I know it can be a temporary coping mechanism for some, and yes it can be something of a cry to be heard, or even a teenage tantrum for a minority, but for many of us, Anorexia is as impossible to CHOSE as meningitis is to contract. You just wouldn’t think to announce to someone with brain cancer that their illness is a choice. I KNOW it’s “not the same… yade dade yada…” but I’m telling you, this thing that plagues me… this THING that has destroyed a whole decade of my life, isn’t a matter of choice. It’s an illness. As present and as torturously painful as anything physical.
Eating disorders can’t just be selected and applied. They begin so small that they’re invisible; and by the time they’re making changes to your body, they’re bedded down hard.
Choice DOES come into it. But not there.
I’ll tell you where next time.
In the meantime, telling your sick friend that they chose their illness, is as helpful as a kick in the teeth.
I’m PAINFULLY aware of the gaping abyss that lies between this post and my last. I have been having huge problems concentrating my efforts on doing any ‘personal’ writing, and the little time that I HAVE been able to focus, has been spent doing the writing that is a necessary component of a course I’m doing.
Yes. You did hear that right. A course.
I’ve now been out of hospital since the 1st of August 2017. That’s almost a whole six months. A fact that, in itself, isn’t joyously impressive. What does make it count for a little more, is the fact that I actually managed the Christmas period without OVER compensating and reigning my calorific intake in so much that I end up with less nutrition on my plate than you’d find in one of those little, green caterpillars that I used to love when I was a small child. Moreover, my weight (a fortnight ago) is pretty much the same as it was when I left The Priory.
Before I crack open a bottle, I have to admit that I was still considerably underweight when I discharged myself from the hospital, AND, my diet has been less than ‘healthy’. I won’t go into that right now, suffice to say that I still have so far to go if I am to continue this uncertain path of something like recovery.
When I came out of hospital I began to give serious consideration to my situation. A situation that left rather a lot to be desired (and yep, that is in the literal sense).
I took stock.
I’m 40.
I’ve lost my teaching career. I live back at home. I don’t have a relationship. I have no children. I probably won’t ever have that as this illness destroys all kinds of natural processes, and the body is clever enough to redirect all its resources away from ‘unnecessary’ things like reproduction, the usual hormonal changes, skin and bone health, whatever… just in order to keep your heart beating.
Stradivarius eat your heart out, right?
Right.
Seriously. This is not a great situation. But then Anorexia will do that to you.
Anorexia will take all you’ve ever valued, all you’ve worked for, ached for, bled, sweated and cried for… Worse, it’ll take all that COULD BE, and it’ll rub away, like an eraser on the same piece of paper, until it finally destroys all your could haves and all your would be’s.
That’s why, I came up with PIE.
A simple recipe for something that might look like a life..
It’s hard going, and I’m writing now because it’s all about to get harder (I think). But that’s why I need to keep reminding myself (and any other ED sufferers) that whatever battle lies ahead, it just CAN’T be as bad as the constant torture of Anorexia. The torment of eating a little more CAN’T match the constant turmoil of bargaining with the illness, running though sum after sum, compromising with the darkness, allowing it to deny us TIME and TIME again. (I’m writing this praying it’s true). The opaque sense of flimsy truth is so hard to FEEL, and yet it’s all I have if the next six months is to look different again. That’s why I’m going to carry on reversing the pattern, adding to my plate, painfully bending the bars of the cage I’m in.
That’s enough on the matter for now. This is already so much longer than I intended it to be.
The pie will keep.
Without wishing to sound all bah-humbug about it, I REALLY can’t share the sentiment of the song that blares as I push my trolley up the soft drinks aisle in my local supermarket. I realise it’s not supposed to be taken too literally but honestly, the sheer inanity of some idiot’s wish that ‘it could be Christmas every da – aaay” is, at best, teeth grittingly stupid, at worst, utterly irresponsible. (I know for a fact that occurring even once a year increases overspending and subsequent problems with debt for some of the poorest families in the UK.)
The song continues to blare across the store and I swing into the middle aisle in time to catch one woman (who apparently has some inside info about a nationwide dearth of flour that the rest of us aren’t privy to) almost mow down an older lady in her path. Glancing round for someone to share her indignation, she looked at me shaking her head and starting to mutter something. Not really wanting to buy into this her fury, I just smiled sympathetically and shrugged offhandedly. “Christmas, hey?” She grunted disconsolately. “Really does bring out the best and the worst doesn’t it?” For a second, she eyed me with uncertainty and then snorted. “Bloody right” she said.
Thing is, and I bet my stocking this is true; most of us over a certain age would hate the thought of Christmas everyday! The shops are rammed, roads gridlocked, transport more squashed than ever, people more harried and that’s just the tip of the iceberg. Even some of my most togetherest friends (poetic licenses granted for Christmas period Ts and Cs apply) struggle at this time of year. Christmas for those affected by any illness can be especially difficult, perhaps because the pain felt by sufferers and their families is brought into such stark contrast by the sense of festive merriment.
As a seasoned Anorexic, I find this time of year to be particularly torturous, so much so that almost every Christmas for the past five years, has in some way contributed to my ending up in inpatient treatment. I can only write from my personal experience, but I want to explain why Christmas with an eating disorder can be so difficult.
1. The fist reason seems obvious. Food is suddenly everywhere. It’s inescapable, and far more so than usual. Supermarkets are cram full of luxury items; not just your standard ice cream. No. The very finest ice cream made with fresh, sweet strawberries, rich chocolate or vanilla pods hand picked by velvet – furred monkeys living in luxury Madagascan tree houses. Shelves are lined with glistening golden wrappings, the finest of wines and giant tubs of cheap chocolates hang out, competitively priced, attractively arranged.
But Anorexics hate food right?
Wrong! But you could be forgiven for thinking so. After all, who in their right mind would starve themselves to within an inch of their life if they enjoyed food?
Well. This is why an eating disorder isn’t the lifestyle choice or the vain whim of a silly young girl who wants to look like a model, although the media have often billed it to be. An eating disorder is a mental illness, and a complex one at that. With the highest mortality rate of any mental illness, Anorexia needs to be taken more seriously by the media and by the fashion industry. It is still so misunderstood.
Back to the food thing… Contrary to popular understanding, Anorexics don’t dislike food. They love food. They long for food. If you are the loved one of a sufferer who swears they don’t like it, don’t be fooled. It’s the illness lying. I’ve known Anorexics who confide that they lie in bed at night, planning meals in such detail, that they feel as though they’ve actually eaten three courses by the time they fall asleep. Others cut pictures out of food magazines to stick in scrap books, watch food programmes and obsess over recipe books. I’ve even heard one clinician refer to this as ‘food porn’.
And all this time, with all this longing, the Anorexic starves.
Doesn’t make sense? That’s because it’s a MENTAL ILLNESS.
2. The second reason Christmas can feel like torture is because many sufferers spend a lot of time and a lot of energy on NOT thinking about food. Personally, I’m one of these. I do a lot to distract myself from a hunger that can sometimes be so raw that it terrifies me.
Because it’s a holiday, often mealtimes become the main source of structure in our unformed days. With all the added drinks and nibbles, the festive period can feel like one, perpetual banquet. This can be terrifying for an eating disorder sufferer because it means they may FEEL as though they have eaten far more than they normally would, and mostly, far more than they actually have (reality is generally very distorted).
I want to explain more because there is so much more to write about, but I fear this is in need of more structure as it is.
I suppose what I really want is to reach out to those unfortunate others who find themselves feeling so desperate and out of control over the next few days. I want to say, “hang in there. the days will pass. It’s not as long as it feels. You are not alone”. I want to speak to families who, through no fault, don’t understand. I want to encourage them to be gentle, not to lose heart, to seek support. A young anorexic / bulimic can’t be shouted / coaxed / bribed out of a mental illness.
And I want to say that somehow, somewhere, Christmas takes place irrespective of our state of health. Christmas takes place regardless of our state of belief even. It takes place for Him, and yet it began for us. In this, and in this alone, I find a flicker of hope.
If you’re reading, believer or not, sufferer or not, I pray you find the peace, health and touch of sparkle that the gift of the Christ child can bring at Christmas. If you’re finding it tough, please, reach out. You don’t have to be alone.
I’m in that awkward position again… The one where I find myself dodging my blog because I’m too much of a perfectionist to just sit down and type just any old thing. Instead, I wait for the perfect conditions; the perfect subject; the perfect words; inspiration; motivation; perfect moment in time… You name it… body temperature, mind space, bit of wisdom, poetic stance; I could go on…
Suffice to say then, if I only put a tenth of the energy I spend fretting into actually writing, this would easily be material for about four books!
And so I come at it head on. Ignoring the pull of perfectionism. Here are my plain words. I’ll write something more substantial soon…
Watch this space.
If you think that being in hospital for five months would have afforded me ample time to write, you’d be right. Difficult then, to explain that although hours at my desk stretched like the Cornish coastline, my mind contracted and contorted like 17:30 on the M25.
Inpatient treatment for Anorexia generally leaves my insides steeped in a fluid sense of agony. Words curdle in my throat, congeal in my head. The process of weigh restoration at once answering the urgent cries of a desperately malnourished body, yet stealing every ounce of my self – styled safety. No half sane person can comprehend the half cocked comfort an Anorexic may take from being able to feel each rib; from seeing the deepened pit where the neck meets the sternum; feeling the valleys and protrusions of the clavicle and the hollow caves of the underarm.
It sounds like lust… Perhaps I am mourning the loss of my terrifyingly tiny body. Perhaps I am merely giving voice to the Anorexic fantasy, trying to confess the dark longings that lie like dogs with one eye open, just waiting for me to pass a full length mirror, or absently rub my recently re-fed arm.
In truth, I left the hospital against medical advice and nowhere near ‘healthy’. BUT, I have come a long way. I am not the death dodging spider that crawled up the hospital steps on March 15th. My heart beats without the frightening bradycardia… My white blood cells are better, I am no longer hypoglycemic (well… not AS much).
My insides are probably pinker…
I can string sentences together more easily. I can THINK enough to tackle some of the twists of a cryptic crossword (note: I say ‘some’!!)
I am grateful to The Priory hospital for their INCREDIBLE support. Their treatment was second to none, the best I’ve had by a long way. I was spoken to with such respect, kindness and, when I needed it most, logic. My views were listened to and the fact that the patient sometimes knows what’s best for them, was actually woven into my treatment plan.
I chose the groups I could manage and left the rest. I managed my own time.
I took comfort in creating.
I stuck it out until I reached the target I had set for myself, even went a little above. Three weeks later, I weigh exactly the same.
Sentimental bit…
My gratitude goes to all those who nursed me, and to Dr Iwona Kolsut, for her wisdom; Dr Lousie Bundock for her striking kindness and ‘normality’ ; Brian G for his immense compassion and the good guy Chris for his humour and humanity. They are all figures that my Anorexia resents but that I (the I that is ME) owe my life to. Today I received my discharge notes. They make for positive reading. My hope is that I can sustain the light of hope that took such gentle hands and so many tender breaths to fan into a flame.
And as if that wasn’t enough… (More sentimentality…)
Huge thanks also go to those I know who prayed so much for me. My family (who won’t read this), my friends (some might), my beaut of a friend Chloe who so faithfully visited me every week to paint my torn up nails and encourage me with vision, my incredible friend Valorie (who I’ve never met but who sent me an amazing box of gifts), my church friends, who never fail to love me as I am, those brave and suffering patients who I walked some of the way with, and all the people who I know hold me in thought and love. I have everything to live for.