Tag Archive: Anorexia


animals-st-francis-2As a young girl, my conviction that I was able to communicate with animals, coupled with my parents’ point blank refusal to have anything other than a goldfish in the house, gave rise to my fantastical delusion that I was the living embodiment of a cross between Dr Doolittle and St Francis of Assisi.

Nowadays, despite still loving the idea of pets, the practicalities and the expense prevent it from becoming a reality.

So, I preface this post explaining that I’m not a real ‘animal person’. Not to be confused with someone who doesn’t care about animal cruelty. I do. Controversially though, I believe that human beings are of greater worth than animals (and find it endlessly sad that the NSPCC receives less donation money per year than the RSPCA) .

(I know. I know. There will be somebody somewhere wanting to spray paint the word ‘bullshit’ across my blog as I type this).

The reason I’m explaining my general attitude regarding animals is to provide some semblance of a context for what follows.

Yesterday  I was sitting on the sofa vaguely watching the early evening news while I threaded two tiny beads on a pair of metal findings. I rarely devote my complete concentration to the TV, and use that kind of ‘down time’  to make stuff; be it crochet, origami, knitting hats, scarves earrings, bracelets… whatever the current creative obsession affords.

Suddenly, a horrible bone splitting crash.

It had come from the large patio window at the end of the room.

Dusk falls darkly now that the October sun drops faster, and from a well lit room the opaque midnight blue outside seems blacker than it really is.  I went to the window, cupping my hands against it to erase reflection.

On her back, a female blackbird lay flapping, speckled breast skywards,  trying to right herself.  It was a heartbreaking sight, such a beautiful bird, so helpless and so shocked. It had happened so fast.

Instinctively, I scooped the bird into my hands and held her for a moment, felt her rapid heart, her tiny trembling. “Best left alone,” advised my companion. “They’ll very often pick themselves up and fly away when they’ve got past the shock”.

I set her down, right side up; draw away, the tip of my heels rolling forward to my toes.

female-red-winged-blackbirdThis evening, I am struck by my shocked response to her plight. My sudden immense pity for this little bird who, even if she could find flight, will never eat again. Her beak had clearly taken the impact of the smash, the glass sheet cruelly driving the top and bottom to twist in opposite directions. Never again will her meal be plucked from the ground with pincer precision. Never will the sharp beak meet to hold food for her young.

These twinges of sadness for my broken bird are suddenly shot through with irony. I realise that, for a decade, I have systematically denied my body the nourishment it requires in order to function in the way it is meant to.

Do I  pity for it?

Do I lament the months of deprivation? The semi starved state that results in hypoglycemia? amenorrhea? the inability to stay warm? a lower immunity? osteoporosis? reduced life expectancy? liver damage?  potential organ failure?

Why is it, that I am more upset about the broken bird than I am my breaking body?

I sound like my mother when she crosses into panic mode. And there aren’t any easy answers.

What I would say, is this.

An eating disorder pushes the sufferer to extremes that no sane minded person can conceive. It seems to contradict that which is instinctual: the drive to survive that ensures the continuation of the human species. Of course, the width of the gap between the urge to survive and the urge to starve depends on how deeply entrenched the eating disorder has become. I’d like to believe, that in its infancy, the illness may have been tempered, dare I say, hampered and arrested, by a glimpse into the future damage I would sustain. I’d like to believe that, because if that IS the case, then perhaps early warnings would make a difference to someone.

What I know is that part of the pathology of Eating Disorders, is that they can  somehow usurp the sufferer’s natural born instinct for self preservation. Anorexia hijacked mine to the point where my natural response to the idea of my body being ‘well’ is, at best, indifference and at worst, revulsion. In the topsy turvey world of Eating Disorders, many sufferers equate starvation with success.

Back in the natural world, nobody wants to fail. Failure is B A D.

This idea carries over into the world of ED. What doesn’t follow, is the notion that somehow failure is death. Anorexia screams that ‘wellness’ is weakness, health is self indulgent. Being healthy means being a ‘failed Anorexic’.

I know it sounds crazy, and it doesn’t apply to every person who has an Eating Disorder. If you have a loved one suffering, it’s worth a try to gently ask them about the contradictions between the ‘well’ part of them and the ‘ill’ part. Go easy though. They may not be aware of it or they may not experience it this way.

Personally, I’m trying hard to re-program my mashed up mind, so that I can go back to thinking about health and wellness in natural world terms, rather than the conditions set by Anorexia.

The little bird wasn’t there when I checked again. She has somehow flown away. I hope she will not starve.

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The following post is something I already published on a different blog. Call me lazy, but sometimes I’ve simply explained something as well as I can. No point reinventing the wheel, right?

Anorexia is a shapeshifter of an illness, deceptive in more ways than amyone could imagine. Don’t be fooled by the media perspective. Although anorexia makes its victims LOOK the same, the ways in which it infects each person, the periods of infliction and the ways it gets into someone are never the same. 

As some readers may know, I’m in a ten bed specialist unit and each person here carries their very own strain of Anorexia. 

Ive always been a fan of analogy. What follows is the story of how the illness got to me…

A small, blue clad child stands in the grey playground; back turned from her playmates; tiny hands pressed tight against her eyes as she chants numbers in a voice higher than it is loud.

Behind her, a group of dishevelled children move with silent, exaggerated care; the thrill of tension bursting from concentrated rosebud lips and then, delicious stifled screams as the blue child swings round, sudden and bellowing and the clenched stealth and stillness break, pouring a cool, white rush of pure delight over each small figure, even as they fight to keep the tension in their form.

Grandmother’s Footsteps.

The aim of the game was for the players to manage to creep up behind the person who is ‘it’ without being seen to be moving. ‘It’ could turn around at any point and the other players would have to instantly freeze. Those who were still moving when ‘it’ turned around were immediately sent back to the starting line.

Why am I writing about an old playground favourite?

You may well ask.
And quite simply, it is what came to mind when a despairing loved one asked me how on earth it got to this point.
Perhaps Anorexia’s approach is different for an adolescent or college student, perhaps it walks with a different gait, I can’t really speak for others. I can barely even trace its steps towards me. What I do know is that the illness wears many masks and easily poses as the smallest giggling schoolgirl until you turn away, reassured that it isn’t getting any closer.

For a 31 year old woman, Anorexia began as a wonderfully refreshing experience of exercising after giving up smoking. It’s steps were light, triumphant and exciting. Continuing to feel healthy, my body began to tone up and I lost a few pounds.
It doesn’t hurt to cut out a few foods in the name of being healthy, right?
Less bread, less cheese, less meat, less pasta.
Next time I checked behind me, Anorexia was a few steps closer and although a part of me knew it, another part didn’t really believe it would be interested in me. I was too old for that sort of thing. I was too ‘sensible’, too grounded, too self aware.
I turned my back.

No red meat. Only a few mouthfuls of pasta or rice. No bread. No cheese.
I swung round. Anorexia froze. I couldn’t tell if it had moved or not.
No meat. No carbs. No dairy.
Low calorie fish, salad leaves, fruit and water.
And where once I thought 6 stone would never be possible, now I dream of 5 and a half.

And Anorexia is playing. Oh definitely. It’s creeping now and it’s not bothering to freeze and I’m not bothering to turn my back.

Its steps, so quiet and so disguised at the start, are heavy and quite careless.

I can no longeer stop them in their tracks by turning around. I can’t make the fearless freeze.

Now my mind is full of the footprints and although I know tracks can be covered over, I’m not sure how and so the game has become a dance. My shapeshifting partner, both a close friend and a worst enemy, simultaneously giving and stealing life. One moment its steps bring elation, the next, bottomless despair. One day I dance with fluid grace, the next with lead-soled boots.
One thing I do know is that in reality, Anorexia Nervosa is about as much of a game as Russian Roulette. It has a higher incidence of death than any other mental illness and has clamied countless lives over the years.  Treatment is more effective the earlier the illness is caught but getting GPs to to take it seriously can be a problem (though why this is still the case, I don’t know).  You would think that in today’s social climate, any hint of onset of Anorexia, Bulimia or any other ED would be treated as serious enough to warrant immediate intervention. 

It would be so easy for my little blogpost boat to sink in the murky waters of semantics, and without getting too punctured by the range of philosophical angles that one could discuss, i really just want to vent my (ever present) irritation at the language used by the advertising industry; in this case ‘The Weetabix Company’.

In my usual post dinner position at the end of the sofa, I was half watching an action thriller (questionable use of the word ‘thriller’), crocheting a monkey’s arm and sipping a small decaf coffee. The ads came on and I half listened to the voiceover on an advert for Weetabix. Not just ANY old Weetabix though… a NEW and exciting product marketed as ‘Breakfast On The Go’.

Okay so they’ve cashed in on the whole blended drinks craze that seems to have swept over the ever increasing ‘clean – eating- Ella- loving – nutri – bullet – blending’ demographic in our nation. Not a problem. People are busy, time is unfair in the mornings and breakfast on the go is, at least, still breaking a fast.

My problem began when the advert reached its finale and the slightly Cockney, ‘bit of a lad that everyone loves’ male voice declared, “New Weetabix High Protein On the Go…”

and…. wait for it…

“A PROPER BREAKFAST…

BOTTLED”

I know it sounds like I’m splitting sematic hairs here, but honestly, SERIOUSLY, it’s a kind of oxymoronic advertising disaster…

I don’t really want to get into a long debate around the definition of ‘a proper breakfast’ but surely, SURELY if it IS a proper breakfast, it wouldn’t be on a BOTTLE! Not unless it’s for a baby…

An audience of non-eating-disordered folk will probably just shrug at this notion and possibly view it as a somewhat petty quibble, but for someone whose world has been hijacked by a vicious food related illness this kind of bizarre advertising can be a powerful (and potentially dangerous) way of reshaping and redefining what is ‘proper’ and ‘normal’. Although I’m not confident in defining ‘a proper breakfast’, I sure as hell know what is NOT. And a bottle of Weetabix doesn’t cut it.

Rant over.

Apologies to all who remain unconvinced and to The Weetabix Company who, no doubt, worked very hard at perfecting their script. Next time though, try marketing it as baby food.

I’ve been in an Eating Disorders unit for the past month or so… part of the reason for my silence here.

I got out a week ago and so I’m dipping my toe back into the Blogsphere….

Watch this space!

You know “the grass is always greener…”?  It’s a common enough expression.

But when you think about it, it doesn’t make sense.

WHY green when it’s actually red?

The grass outside my window is no more green than Bob’s my uncle.

I can hear your confusion and I know what you’re thinking. You’re wondering where the hell this is going…  A puzzle. You’re frowning. Figuring out the point.

My point is this: that every time you look at that park, or that garden… you’re thinking that the grass is green. You’re SEEING it with your own eyes. ACTUALLY SEEING it.

So you believe it, right? You can see the grass is green so you believe it. Perhaps you’d even swear to it.

But you are, quite simply, wrong.

It’s not green.

You’re still frowning… or your lip has turned up slightly at the very edge…

What will it take to convince you that grass, as a natural product of this beautiful earth, is bright red ?

Stop and think. Just for a few seconds. What would it take?

Because that’s what everyone else sees.

Everyone else knows it’s red.

 

Have they just been agreeing with you?!

Going along with you… Not daring to challenge your view.

Nice one.

That’d be why you still believe it’s green.

 

I know and understand that you THINK this is madness. I know you SEE green… But it’s red.

FACT: Everyone else knows and sees red. You alone see it as that bright green colour.

red-grass-

Stay with me. I’m trying to make sense (despite all evidence to the contrary).

It can be argued that a certain degree of body dysmorphia is part of the human condition.

However, whilst for many of us the distortions in our perceptions are not significant enough to cause distress, it’s very difficult to gauge just how accurate our perceptions are, particularly when they involve our appearance. Hence, a person may grow up with a mole on their cheek and barely see it, whilst another with the same mark, may grow up feeling ACUTELY aware, paranoid even, that it’s all anybody notices. Certainly it may be all THEY themselves notice.

Although each case is different, Anorexia and Bulimia often incur constantly shifting distortions in the sufferers perceptions of their body. the extent of this may depend on the individual’s mood, the amount that they’ve had to drink, the whispering voice of their illness, or how full / empty they feel at any given moment. It doesn’t appear to matter whether the ill person is a  tortured artist or a brilliant scientist, the degree to which they are susceptible to absolutely absurd thoughts about food and the body’s relationship to it, remains the same.

For example, as a level headed and rational being, I know that I CAN’T be big in any way because the measurements, weights, body mass I am faced with are completely accurate. The ratio is too low for my body to be fat; too low for my body to be healthy.  The figures are scattered on the green grassy earth.

As a sufferer though, I look in the mirror and that grass is DEFINITELY RED. I can SEE it. DAMN IT! IT’S THERE IN FRONT OF MY EYES

AND YOU’RE STILLSTILL trying to tell me it’s green!

I’m fine! There’s nothing wrong with me! I look normal… healthy.

Some days, my arms look chubby… and my thighs often look massive towards the end of each day… but generally, I look perfectly normal.


Arguing with an Anorexic can be hugely upsetting, incredibly perplexing and downright frustrating. You see one thing, they see another.

Families in particular will suffer the agony of watching their loved one deny the truth; a blank refusal to hear the other side of the story. It’s painful to be stonewalled or to have your words hurled back at you. Few can identify with the desperation and helplessness experienced by screaming at a skeleton whose rock solid belief is that they are ‘fat’ or ‘fine’. Not everyone can trace the ridges of the bone along the clavicle of a loved one who refuses to eat because they think they’ve got plenty of fat still to lose.

My message is convoluted. It’s a poor attempt to somehow explain the complex illusion / delusion experienced by the victim of an Eating Disorder like Anorexia.

I know many, many women who dislike parts of their body, or at least, are dissatisfied with particular aspects of their appearance. When someone develops an ED, that dissatisfaction, becomes a rigidly held belief which apparently robs them of a realistic view of themselves. Much like joining an extremist party or cult, Anorexia transforms the mind in such a way that makes reasoning with them, impossible and unrealistic.

Hopeless as this sounds, my final message is to anyone who is having to watch a loved one starve .

Don’t give up.

It can be heartbreaking and it’s often a long, tiring path, but if there’s one thing that will help to save them, it’s a quiet, pervasive message that it’s the ILLNESS that’s lying to them and not the rest of you. If you’re met with a brick wall, don’t employ a bulldozer. You’ll flatten the person rather than the illness.

Remember the quiet echo of the drip that splashes against a stone surface. Gentle but unswerving,  the message will sink in, and though they may always see a tinge of red, at least they will accept that, mostly, grass is green

water on stone

It was clear from an early age that I wasn’t ever going to make a scientist. Certainly, the most memorable things from my physics lessons involved throwing wet paper towels at each other, and the time when I fell off my stool because Leon Kavanagh pushed me too hard.

It’s really Mr Thomas that I blame for my ignorance on the topic of magnetic force. He had bad breath and liked to lean over your shoulder to illustrate his point. Awful as it is to conform to the stereotype of the bored teenager, surely it’s even more awful to conform to that of the fairly greasy, and very definitely sleazy, Physics teacher!  All this to excuse myself for what follows; a very unscientific reference to a very scientific process.

It’s possible that if you belong to a certain generation, you’ll have had one of those arched magnets lying around the garage. You know the ones… a U – shaped piece of metal coated, in part, with bright red plastic.bare magnet

I loved ours. My dad’s. As a kid, I’d be content to mess about with it, trying to get to that point where I could move the screws / nails without the magnet actually picking them up. You know THAT point? What was it that was SO satisfying about THAT point?!

Anyway. The magnet is something I often refer to when I’m attempting to explain something about the nature of Anorexia and, moreover, the PURPOSE that it serves. Because it does HAVE a purpose. And just because there may be no apparent reason why a person is dogged with this illness, doesn’t mean that it’s a completely random occurrence.

Although I am writing mainly about Anorexia Nervosa, sufferers with other eating disorders will identify with the fact that before they even had a hint of their illness, they were chronically anxious. In my own experience, I had suffered with almost crippling anxiety and panic attacks for many years before Anorexia hijacked my brain. I have heard so many other patients refer to their inability to manage everyday anxieties, stories of phobias, extreme panic, fear.

Whether it was recognised in childhood or not, I would hazard a guess that it is actually an anxiety disorder, generalised or specific, that underpins Anorexia.

And so, a sort of Anorexic blueprint, is born.

The child who is very frightened about being left alone to survive in the playground; the one who studies to be the best and so is the best and then lives in fear of not being able to keep being the best; the person at work who is held up as being exemplary, and is terrified of being ‘found out’ because he or she has no self belief and feels like a fraud. Anxiety. Anxiety. Anxiety.

You may be reading this and identifying the fact that this is something we ALL experience. Perhaps it is… but everybody manages their fears in different ways, and Anorexia, whilst still being a severe and enduring illness, often begins as a means for managing fear.

Imagine a tabletop covered in iron filings. Horrible little bits of grey, scattered all over  Try to scoop them up and they go everywhere…

Now imagine that each of the filings is a different ‘free floating’ fear.iron_filings copy

So many different things to cope with, too many. It’s all very out of control and you can’t rest because you’re in a constant state of hyper alertness; a state where heightened anxiety is natural because everything, EVERYTHING feels like a bit like a threat… a challenge… The filings don’t shift, if anything, they seem to multiply.

Anorexia is a magnet.

And it’s bigger than anyfilings drawn to magnetthing else.

And it’s really powerful.

Due to a force that I should at least have some understanding of (but don’t because I didn’t bother in my Physics lessons) the filings are immediately drawn to it as it hovers over the tabletop, sucking up every little shred of metal.

It’s what Anorexia does. All the individual anxieties stick to it…. fuse with it… until, one day, they don’t really exist any more and all that’s left is the illness. One giant entity. One focus. One fear.

That of never being able to be thin enough.

Simple?

Yeah. About as simple as physics.

The hardest thing is the terrible realisation that you’re not holding the magnet any more and that it, in itself, is far, FAR stronger than you; As if somehow, cruelly, the incorporation of all those little grey shards, has strengthened the force that then turns on the sufferer him/herself and begins to diminish them.

 

 

 

 

 

 

 

 

spaghettiJust eat! It’s really that simple”

The well meaning eyes of family and friends cast along the frame of an ED sufferer; pupils travelling the ridges of the clavicle, the skeletal hands and down the birdlike legs.

Just say, I CAN do this

Just make up your mind that you’re GOING TO do it and then DO IT

Lots of ‘justs’. Lots of good suggestions. Lots of spilled frustrations.

So why isn’t it ‘that simple’?

Surely it’s not rocket science…

Well…. in actual fact, although it’s NOT about rockets, there is quite a lot of science involved; physiology to be precise.

When someone is well below a healthy weight, the list of psychological blocks to recovery may be a mile long. However, unbeknown to many, there are also many physiological reasons. Chemical and hormonal shifts in the brain that induce behaviours which can make it incredibly difficult to behave in a ‘normal’ way around food. Experts in the ED field will tell you that a full recovery isn’t possible until weight has been restored to the point where a patient’s BMI is between 20 and 25. In fact, many argue that it is ONLY when a patient reaches a safe, healthy weight (and so, BMI) that recovery can begin.

I agree.

One of the strongest pieces of supporting evidence we have for this idea comes from a ground breaking, wartime,  experiment into the effects of starvation, performed by Dr Ancel Keys.

In 1944, as war raged throughout the world, Keys recruited 36 young men (mostly conscientious objectors) all deemed to be at a peak of physical fitness and mentally / psychologically healthy.  Over a period of a year, he studied the behaviours and mind set of the men as he systematically cut their calorie intake and increased their levels of exercise . By the end of the ‘starvation phase’, the men had lost around a quarter of their body weight and their physical appearance was skeletal.

Photographs of the subjects reveal bodies not dissimilar to those who had suffered in concentration camps. Certainly, the men appeared to have been subject to a lifestyle which denied them of their most primal need; much like the self inflicted discipline exercised by those with Bulimia or Anorexia Nervosa.

For someone attempting to recover from an eating disorder, the most pertinent revelations of ‘The Minnesota Experiment’ lie in the fascinating changes in behaviour displayed by Keys’ subjects. Behaviours and attitudes practised in secret, cloaked in a horrible sense of shame, perhaps feared by the sufferer to be so ‘odd’, so far from ‘normal’ that nobody should ever find out… Behaviour that actually, The Minnesota Experiment, proved to be a direct result of the human body being starved and therefore, some way beyond the sufferer’s control.

Keys documents that the more the men starved, the more overwhelming was their obsession with food. Food became an absolute priority while the rest of the world, family, politics, opinions, religion etc, all faded into obscurity.  The men were restless, their minds unconsciously forcing their bodies to forage for food, allowing little sleep as the need for nutrition overrode all other basic needs.

Interestingly, all the men developed ‘abnormal’ eating patterns, becoming ritualistic, taking up to two hours to eat a meal, cutting food into tiny pieces,  mixing food with liquid to make more of it and hoarding food so they could take it back to their bunks and graze on it. Moreover, the thinner the men became, the less able they were to judge their size as being thin or underweight. A few of them even went so far as to express thoughts that others were too fat. Spot the quandary of an Anorexic.

There were many, many physical effects, most of which an Anorexic will experience as par for the course, but in order to explain why it’s so damn hard to ‘just eat’, I wanted to draw from the physiological findings of Keys’ experiment. The state of semi starvation, of extreme self denial, is in itself, a trap. Being below a healthy BMI produces its own set of barriers to eating, making the initial ‘pre recovery / weight restoration’ phase about as difficult as it could be.

It’s really not as simple as it might seem.

Certainly, during the period of re-feeding, the men ate happily (obviously not suffering from an ED) but my point is that whilst starving, the men underwent such changes to the chemical balances in the brain, that food became an absolute obsession and habits previously unheard of, became commonplace.

When an Anorexic tries to recover, they not only battle the mental blocks that the illness creates, they also have strange, unseen physiological blocks.

(Another terrible hidden suspicion of The Anorexic, that their appetites will become insatiable once they begin to refeed, is also borne out in Keys’ evidence, producing yet another barrier).

I could go on and on about this great study in starvation, but it’s all for another post. What I want to convey is that, despite all appearances, recovery is never as straightforward as ‘just eating’. Refeeding, within itself, is fraught with unconscious physiological blocks and hurdles.

For me, personally, despite this knowledge, and armed as I am, I still stand on the wire, looking at that vast expanse that is ‘no man’s land’, weighing up the risk, trying to see where the mines are set, where the searchlight falls.

It’s been ten years raging, this war.

gripping barbed wireI still want to fight…

…but the real enemy

lies in the woodland

on the horizon

I still need to make it to.

THAT’s the pathology of an eating disorder.

THAT’S the physiology of starvation.

 

Dear ___________,
agony1

It’s hard to  know where to be
gin because I cant remember where or when the beginning was.  What I DO know is that you’ve no idea how hard I’ve had to work just to keep things balanced.

I want you to stop and shut up and LISTEN.  I’m going to try to tell you about what you’ve done and what you’re STILL doing. It’s a hard thing. Bear with me.

Despite your attempts to poison me and to harm me, I fought to stay healthy. I cleaned your blood, carried it round, battled illnesses, healed up your wounds.

You crossed what had become a very blurry line around ten years ago.  Then the real brutality began. You fought me with systematic, dogged determination; tried to change me, control me, reshape me with the tools of death you fast learned to use.

The irony of the fact it began with a health kick hasn’t escaped me. When you cut out the cigarettes, I was overjoyed! Clean breathing at long last. I’d been clogging up with thick tar, and in some ways, I think I’d resigned myself to the blackness, and to the knowledge that it would continue to seep and creep, until it covered all my tender healthiness.

But you cracked it! And I began to work at cleaning it up, helped greatly by your exercise and your healthier lifestyle. It was so good for a while.

Up until you stopped feeding me.

At first I wasn’t worried. I don’t even know when I first noticed. Those workouts of yours grew progressively harder to sustain. When I began to flag, instead of the little rest I was used to, you pushed me all the harder. After sprinting half a mile, you’d ramp up the speed. For a while, I thought it was normal; y’know, a good technique for burning my fat and making muscle. I trusted that you knew your stuff. I figured you’d stop when I reached my optimum, and I worked so hard for you, did what YOU wanted. Stretched to the limit, I kept going, convinced you’d be satisfied with my performance.  It’s hard to acknowledge just how far you fell from my expectations and it’s quite impossible for me to understand.

Over time, you and I underwent a transformation that nobody, NOBODY could believe. I think it’s fair to say that it simply wasn’t a you that I recognised.

You were brutal.

Whispers of encouragement became barked orders as coach turned to tyrant. I began to dread you.

Your lack of mercy started to take its toll as I struggled to balance your system.

I tried to tell you. I couldn’t help but let you feel the impact of your cruelty. You can’t flog someone half to death and expect the scars not to show. I stopped biting my lip and started to shout, but you lashed me harder, your determination a steel whip, your mission a desperate urge to keep control.

And all this talk of exercise is perhaps an avoidance of the most painful point: that of starvation.

I struggle here.

The louder I cry, the harder you starve. The more I plead, the more you withhold. If I let myself think of food, you give me less, and yet, I’m so hungry, I can’t think of anything BUT.

You’re killing me.

It’s not rocket science. If you don’t take care of something, it’s going to fall apart.  I’m SO tired of having to hold you up. You demand so much of me but give so little; a cruel rider lashing at his horse, numb to the pain of its seared flank; numb to the deep ache streaming down it’s legs, for all that matters is the win and the blinkers of victory blot out the damage.

If I was a separate being, you’d be done for abuse. The cruelty is almost intolerable. You tease me with the broken edges of foods that I crave. You tell me I can have it, then, just as fast, tell me I can’t. I’m starving and you lead me to the fridge fskeleton appleull of food that I’m not allowed to eat. Like an object of worship, you kneel in front of the full shelves, and as I cry that it’s nourishment you only see numbers.  For food has become a mass of calculations that stream through this brain, tangled wit
h the inevitable bargaining script of ifs and buts and onlys… And all the while, my mouth drools.

You’re breaking me. My bones are dry and brittle. Osteoporosis casts shadows on my hips and my spine is wearing thin. I can’t remember how many years since I bore the ache of fertility. This womb dry and cold, no longer fit to feel the moisture of tiny breath.

Every step is painful as bone grinds on stone. Every step is my protest. And yet, you carry on, rising above the screaming soles, too frightened to stop. You run away from me, barely look at me, only glancing to check that your clothes cover your skin.

I am weary, made tired by your disdain. I am weary of being underfed, ignored, tempted, denied.

I am weary of being brought to the brink of health, and then being starved to the brink of death.

I am weary of daring to trust that I no longer have to hunt to survive, then being shot at when I rest.

I am weary of empty promises, of bearing the weight of your illness.

If you continue, we will both die in this civil war and nobody will ever know who won or who lost.

All of me will rot; but, you if you remain, will rise above the webs of half rotted reasons, above the dry dust of me

And it will all

seem

so

completely

senseless.

******************

I didn’t want to seem rude when my very lovely clinician suggested writing a letter to myself. I almost squinted with the effort of holding back on the eye roll, resisted the sideways pull of my lips.

Been there. Done that. Got T-shirts to clothe an army.

But. This was a bit different. Not a ‘ years from now thing. Not a letter to myself, but a letter FROM myself. More specifically, from my body.

I put it here to remind myself why I need to keep eating. I also put it here hoping that it might be helpful in some way, to someone else.

 

 

 

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… I’ve given up blogging… Anyone stumbling upon this site could be forgiven for thinking that this is just yet another open ended account of a person whose fingers stopped typing, whose mind stopped composing.  I come across them so often. Those who suddenly stop. Dead? Fulfilled? Too busy?

Anyway, as I say, to all intents and purposes, it looks as though I too have joined the unblogged.  The reasons are many but, irritated at the fact I feel something akin to guilt, I am deliberately choosing to keep them to myself. (As though THAT’S going to make a difference).

For anyone interested, what follows is an update.

After thirteen long, gruelling (yes, that is a pun on hospital food) weeks, I finally left the unit where I was an inpatient. In truth, my reasons for choosing discharge over a longer stay were driven by the Anorexia. A fact which I was very open about but also very upset and frustrated at.

The expected rate of weight gain was a minimum of 1 kilogram  per week. If this wasn’t achieved, the weekly ward round discussion invariably resulted in an ‘increment’ being added. In the language of the real world, it means that another 300ish calories were popped into your meal plan, so in addition to your 70g serving of breakfast cereal, you’d have 2 pieces of buttered toast in the mornings, or a pudding after your lunch, then another at dinner… All these options discussed, argued, wept over, refused over a patient’s admission.

My second time in this unit, I got as far as a second ‘increment’ and was defeated by the addition of puddings.

Many readers will scoff and shrug at this point, unable to comprehend the absurdity of the Anorexic dilemma. I get that. I too find it ridiculous that, in an underweight, malnourished state, I refuse to eat a small bowl of apple sponge and custard (though honestly, you could fill walls with the stuff) because I am terrified of what it will ‘DO’ to my weight… I’m scared that that bowl will be the thing that layers itself onto my thighs, adding inches, smears itself around my insides, pushing me outwards, thickening my stomach, disguising my waist.

It’s craziness.

“Not very PC!” cries the world of mental health.

“Not very empathic!” cry the sufferers

But it is. I insist. It is crazy. Which is why, like it or hate it, Anorexia Nervosa is a mental illness, not just a fad or a phase, not an addiction, not a lifestyle choice, not a decision taken by the vain. It’s completely mental. It’s a trick played in the mind of an otherwise very rational being. It almost borders on psychosis; the infliction of unreality, the blindness, the invasive thoughts and sensations.

Recovery though, that IS a decision. It’s one I made when I chose to go into hospital, despite my knowledge that I would have to face my worst nightmares. Despite the fact I would end up crawling on my floor, doubled up in an unspeakable and inexplicable agony.

I’m not saying I want a medal. I’m not boasting. On the contrary, when the going got too tough, I ran. But I’m home in a better state than when I left. What I forget every time though, is that the freedom that looks so appetising (pun-tastic here) from the confines of a prison, isn’t freedom at all. I remember now that the prison isn’t a locked hospital ward. It’s not twelve bedrooms down a squeaky corridor, or a cramped obs room where you sit in stillness til your time of rest is over. The prison is inside. It’s there when you’re ‘out’ as much as when you’re in. The difference is that the freedom you smelled on the inside, comes from not pla
ying by the rules you have to abide by when you’re in.

Fprison-bars-handsreedom for me, right now, is what I get when I skip a snack or skimp on a meal. Freedom is exhilarating, dizzying, confusing. It’s less calories than I had in hospital, less carbohydrate, less fat. And I feel great… in the moment…

But in an cruel, ironic twist, I’m still a prisoner. And it’s at the times when I most celebrate my freedom, that the walls move closer and the chains get tighter.